Well, Brent got to his OT appointment. She was wonderful, helpful to the extreme! Brent tested out to have the dexterity of a 7 year old, little physical strength in his fingers, he fatigues very easily and has the writing ability of a six year 8 month old! She said he has a significant physical disability. Ah, makes a lot of sense. It also amazes me as Brent has managed to get this far with his school work with this affliction with little help. He is a star! What a journey we have had with him! I could really write a book about it. It really is quite a miraculous story. Anyway, I got the report back to the school yesterday afternoon. My bit in all that is done and somehow I pulled it off.
Yesterday was just a major stress out. Between trying to organise work around the appointment (thank goodness for great terrific, wonderful bosses!) and then having the primary school ring at 4pm, to say that Jack was still there..and the bus rang to say no one was there to pick up Stef....Omg....I had to leave work in a hurry to pick them up.(I had organised my mum, but crossed wires, and so she didnt pick them up, my fault) Lets just say it was the day from hell that I just want to forget. Going in to work today to catch up on all the stuff I didnt get finished yesterday and to tidy up a heap of loose ends.
Its not very often I feel the stress of my life, but yesterday was just a major stress out day, by the end of it, I had wooshing in my head, a sore neck and just felt overwhelmed...feeling a lot better this morning though, amazing what a good nights sleep does. I have written out a list of stuff I need to get done at work, the Brent stuff is finished with, and now its just the catchup around the house which has got out of control. I just have to be a little kinder to myself today...none of this was my making, I just have to roll with it and work to get it back to organised.
Oh and Ive made complaints all over the place about Lara Secondary Schools disorganised disability coordination. I want them to realise just what affect their hopelessness has on the families and the children. Can you believe that when I was talking to the vice principal about it and the long term consequences to Brent if he doesnt get this help, she said....oh he can always repeat VCE.....STUPID COW!! He shouldnt need to...not if he is granted this help. I just couldnt get over the attitude that this shit wouldnt affect him long term. Stupid woman.....he doesnt want to waste a year of his life.....not even a minute. GRRR. I tell you, I hit the roof at that..these people really dont have any idea the struggle we have had and continue to have!
The Occupational Therapist will see Jack next. There is a lot she can do to help him along the way with his hand coordination and handwriting. We get it pretty cheaply....I think $15 a session after we take out the government autism initiative. I will make an appointment for him on Monday. She is an OT who specialises in autism treatment.
Anyway must get moving..I think a spa this morning..
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